Tag Archives: limbs

Toy Hack

Around the time we moved to Portland ET was asking for “bwaybways” for Christmas.  At least, that’s what it sounded like.  We’d ask him what he wanted, and that’s what he said. We had no clue what he was talking … Continue reading

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New Bike Thingie

Despite the awful traffic and SNOW this morning we headed out to Shriners for our OT appointment to lengthen PJ’s bike handlebar piece.  It’s made out of this really cool plasticky sheets that are put into a hot water bath, … Continue reading

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Shriners Hospital for Children

This morning Patrick had his first appointment with Shriners Hospital.  They are located in the hospital system where I work, so it’s pretty convenient to visit.  They exceeded my wildest expectations and treated us like royalty. We actually have to … Continue reading

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Mod

We’ve found a solution for that pesky winter wear issue: with this style of shirt, I can just cut and it looks nice.  Now I just have to figure out what to do with sweaters and coats…  

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Christmas Party

The boys and I went to a Christmas Party for our limb group yesterday. Mrs. Claus helped Elliott open a present from the gift exchange. Getting into the holiday spirit! Also, Evan is sick again and he has notified me … Continue reading

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Special Blessings Party and Limb Update

Special Blessings is a local group for families with kids who have limb differences.  “Limb difference” is the widely accepted term for what Patrick has.  The term is pretty generic, and is inclusive of both arm and leg differences; most … Continue reading

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